Are you facing trials? Are physical and mental challenges weighing you down on our journey? Through his experiences with the rare disease myasthenia gravis, host Stephen V. Smith shares encouragement and inspiration as he seeks to create a life of meaning and connection. "Live Life Rare" is the companion podcast to the newsletter of the same name, which can be found at liveliferare.com. Join in the conversation as Stephen helps us discover and pursue what a rare life means to each of us.

Latest Episodes

Wes Michael of Rare Patient Voice

Wes Michael is founder and president of Rare Patient Voice. He joins host Stephen V. Smith to discuss how Rare Patient Voice connects patients and caregivers with the ...

Being Present

Hello, I'm Stephen Smith and today we're going to talk about being present. Our one and only grandson turned two years old recently. He had a small party and he was bl...

Family is the Best ICU Medicine

Hello, I'm Stephen Smith and today we're going to talk about how family is really the best medicine when you're in ICU. I can still see the images today. The noise was...

Good Grief

Hello, I'm Stephen Smith and today we're going to talk about grief. I've been thinking a lot about grief lately. The word often conjures up a widow mourning for her pa...

Life Inside the Margins

Hello, I'm Stephen Smith and today we're going to talk about living life inside the margins. As a child, I struck an unusual balance between grasping a lot of concepts...

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